Monday, November 2, 2015

rooted

We live on the leafiest street I've ever seen. The sycamores are knobby and enormous and meet overhead above the middle of the street. The sidewalk curves to accommodate their trunks. 

I used to say the one thing Lancaster was lacking was natural beauty. The city is relatively flat and surrounded by lots of farmland. But how could I have missed what was right in front of me? This brilliant fall, walking the city streets with my kids, I have been floored by the trees. So many streets are lined with old, established beauties, which are now just past the peak of their blazing color.

We moved here in 1990, on my thirteenth birthday. Then I found the heavy, established quality that the trees seem to communicate downright oppressive. All those Millers and Weavers and Stolzfuses! Everyone is related, everyone stops to talk, communal memory stretches back and back and back. There was a story behind every corner, and I was not in any of them. This felt like a place where we would surely always be newcomers. 

But the weight of this town, over years, ceased to be a burden and became instead an anchor. Twenty-five years later, I feel like myself here; I feel at home. I love it. The way my memory infuses its geography is extraordinary, like the canopy of a tall tree, layers upon layers of leafy branches through which the same ray of sunlight shines. I run with Beatrice in the jogger down the same street in School Lane Hills that I once ambled late, late at night with Melissa when we were fifteen and had snuck out of my house. I walked past our old house this morning after dropping the big kids at school, first remembering bringing newborn Frances here to visit Bob and Cathy (its current owners), then remembering raking leaves in the front yard with my family. I almost conjured my dad's shoulder to lean on as I passed. 

Time and place make a tiny bit more sense here. Continuity offers a kind of peaceful entry into those mysteries. There is more space for the dead in a town like this. 

The circumstances that brought us here in August were - are - the stuff of nightmares. I never could have guessed that cancer would bring us back to Lancaster. But I cannot imagine a better place to fall apart. People my children meet at birthday parties tell them about their grandfather. A teacher remembers me as a teenager. They discover that a friend's favorite babysitter was, at age two, my babysitting charge. So many want to reach out to all of us and care for us in this harrowing time. Gabriel asks: do you think you and Grandma know everyone in Lancaster??

Education, class, and a host of other things contributed to my sense, growing up, that to stay in the place one comes from is to fail. Growing up meant leaving. Ambitious, successful adults follow their own independent passions. Relationships should rank below career - especially for someone who identifies as a feminist (which I did and do) - right? 

This now strikes me as a counterfeit, hollow notion of freedom and an impoverished idea of success. It's a set up; it denies the truth of our embodied, particular, interconnected selves. I first questioned it all when slammed with the vulnerability of parenthood - loving a tiny helpless baby more than myself. A tiny helpless baby does not need or even want a parent with a fancy job or big city real estate. A tiny baby wants a lot of people to love and care for her, and to support one another in loving and caring for her. 

Just so a young family going through a catastrophic illness needs family and friends. We are known and loved here, which is what we need and want. I am watching the rings grow and grow on my family tree, newly aware of the ways in which its roots tunnel through a singular patch of rich soil. It's a desperately difficult part of the story, and I have awful days. But even then, the solidity of this tree holds me up.


Thursday, October 29, 2015

a bad case of the FCCF

Frustrated caregiver cooking fever. FCCF. I've got it, and an awful case at that. 

My mind spends inordinate amounts of time thinking about food: what to cook, how to cook it, how to maximize calories for Mike, how to entice him, how to somehow make something so delicious that it overpowers the pain of eating and rehabilitates the whole ritual of meals into something pleasurable again.

This is something, the rational part of my brain tells me, that is simply not possible right now. Not today, not tomorrow. His throat is simply too burnt and ulcerated by radiation to be able to enjoy eating and drinking. He can barely get through a smoothie. Plain old water is a terrible challenge. Whether I roast or saute garlic before adding it to broccoli potato soup is not going to make one ounce of difference to him. 

And yet while I push the stroller, while I drive to an appointment, I wonder about that garlic. I consider adding an avocado to the mix, or maybe that cashew cream in the fridge. (Speaking of: a friend loaned us her Vitamix. I've used it four times in the past 18 hours.) It's not that I have too much time on my hands - it's that I feel utterly futile and frustrated by the fact that I can do so little to help. And cooking for someone is the most powerful way I know to manifest love, to soothe a hurt.

I was listening to an episode of The Splendid Table on a run the other day, fueling the cooking obsession, when I heard an interview with the Italian chef who cooked for the Pope during his visit in New York. She was so joyful and full of feeling as she described the meals she prepared: how she gathered vegetables from her own garden to serve him, how every choice was made with care. She talked about how food connects us all, and how feeding someone is the simplest form of showing love. 

After one of her lunches for him, the Pope surprised the cooks by coming into the kitchen and asking if he might share a coffee with them. The chef could barely come up with words to describe what this experience of drinking coffee and talking about their lives together had meant for her. I think I laughed and cried while listening. It's not just feeding someone; it's sharing the meal. 

The nutritionist at the cancer treatment center recommended a cookbook called One Bite at a Time that I've been cooking out of over the past week. I think it's great and would recommend to anyone else in my situation, whether suffering from FCCF or not. More than any particular recipe I appreciate the author's approach to cooking for someone undergoing cancer treatment - she advocates maintaining that person's connection to food and meals. Setting a beautiful table, adding flavor, color and brightness to food, using colorful dishes. Inviting the senses whenever possible. It is humanizing to fight against the tendency to view eating as taking one's medicine.

It helps me recognize Mike's great gift to us in continuing to sit down to dinner with his family, to patiently make his way through a bowl of soup while the children bicker and compare school notes and submit to one more bite of peas. 

Asking for a coffee was a generous act. Not that I really have any idea what motivates His Holiness, but I imagine that the coffee itself was less important than sharing the coffee with singular, beloved others. Just so it does not matter much what the soup tastes like for my husband; it matters that he is being fed, and that we eat the soup together. 

(Much to the children's chagrin: soup again?!?!)

p.s. On another note - isn't three year old Frances the baker adorable?













Saturday, October 24, 2015

homemade time, the swearing edition

I recently heard myself say to a friend that I am sick of this crescendoing radiation bullshit. I really am. I am fed up with the whole scorched earth approach to battling cancer. 

Watching my beloved suffer is heartbreaking. And bone-breaking and soul-breaking too.

In conclusion: I fucking, fucking hate it.


p.s. Even when I'm mad, I still feel immense gratitude and love for all of you.








Sunday, October 18, 2015

nurture and nature


As we lingered over dinner yesterday, trying to convince Beatrice that there is no dessert only dinner and watching her nibble a tiny purple carrot oh-so-slowly, there was a quiet knock at the front door. I opened it to find Kerry, with her beautifully open and kind face, holding an enormous bag full of soft and fluffy throws. A warm, snuggly blanket for everyone in our family, each selected with favorite colors and proclivities in mind. How did she know Mike had been shivering with cold yesterday, that he had casually commented that we really needed a cozy blanket in the living room?

And how had Hannah and Emily known that I have been overwhelmed by the beauty of this autumn, that I had just been talking to Gabriel about how we've never found a truly excellent way to preserve leaves? They brought a flower/leaf press with them from Annapolis, amongst other treasures. Milena must have known too, as she sent me this link yesterday as well. 

And in between Hannah and Emily and Kerry's delivery, there was Jessie and her family, bearing many individually portioned bags of frozen, lovingly made soup for Mike. Do you have a sore throat? asked little Elias when he walked into our kitchen. Yes, I do, replied Mike. Now Elias is acquainted with the intended recipient of his earnest culinary efforts. He seemed satisfied. 

Oh! And in the midst of so many comings and goings, Rhoda's big box arrived, filled with gifts and most especially the fabric for a fleece quilt for all of us to make together.

It seems our family and friends are determined to keep us warm and well fed, to maintain a steady flow of music and books and art into this borrowed house. I decided to let it be known via Mike's Caring Bridge site that we could use some backup soup for him, now that only liquids are tolerable. Days later our freezer is full of nourishing broths and purees. Eating has become hard, but I do believe eating food prepared with love and kindness is a little easier going down.

I'm not the one with cancer, but still I say cancer has had a clarifying effect. So much in my life these days has a certain brilliance, a force to it: the color of the sky, the warm spices in a pumpkin muffin, yellow late afternoon light on brick, delight in Beatrice's eyes. The necessity of receiving the care that flows towards us with grace and love. 

A recognition that both reaching out and receiving requires a generous spirit. These past months have stretched my heart's capacity for reception. I'm making space. Sometimes it hurts.

Also: figuring out what is essential. Food, warmth, beauty. Reading aloud together. Walking, biking, making art. The flaming brilliance of the season. The people whom we love and love us, and the people who love them, and the people in turn who love them. The signs of what we mean to each other.



p.s. Our first annual apple picking trip inspired one of the very first posts on this blog. How things have changed! How they have stayed the same! This time we met in Pennsylvania, and Gabriel was missing, and Beatrice has joined us, but Nathaniel still likes to pull a lot of kid weight in his wagon.